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Project Mondriaan will provide sustainable access to in- and outpatient health care data for (pharmaco)epidemiological and clinical research by building local Healthcare Data Repositories
Building on the running "Mondriaan" project, the consortium will develop and test a model for sustainable access to in- and outpatient health care data for pharmaceutical and medical research. Various regional Mondriaan Healthcare Data Repositories (HDRs) will provide rich patient data that originate from local interlinked healthcare databases. Besides researchers, local healthcare professionals and policy makers will use the same data to evaluate and improve actual treatment and healthcare policies. The local cooperation between healthcare providers will offer unique features to researchers as it will be possible to obtain an overview of the complete healthcare track of patients.
Partly because of strict privacy regulations only fragmented solutions for efficient data gathering and disclosure exists in the Netherlands. By implementing the latest IT solutions such as pseudonimization through a Trusted Third Party (TTP), the Mondriaan HDRs will be able to deliver complete but fully anonymous patient profiles.
The HDR's are run by local healthcare providers. Hence, data can only be used with the consent of the healthcare professional who owns the originating database, such as a GP. Under these conditions any party that wants to use the data can request access to the system, and thus they no longer need to collect the data themselves. This leads to more efficiency ('collect once, use many') in the use of such data. If proven successful, the HDR model will be implemented in additional regions, with the ambition to obtain national coverage.
Full project title: The Mondriaan Health Data Repository, cornerstone of the population laboratory
Start date: 1 January 2012
End date: 31 December 2013
Goal: develop a scalable model for sustainable access to in- and outpatient health care data for (pharmaco)epidemiological and clinical research by building local Healthcare Data Repositories
Principal investigator: Diederick E. Grobbee
Project size: 16 FTE's
Project budget: 2400 k€
Partners: GlaxoSmithKline, University Medical Center Utrecht, University Medical Center Groningen, University of Groningen, Utrecht University, Johnson & Johnson, Magistro, NIVEL, Jan van Es Institute, Academic Medical Centre of the University of Amsterdam
“Running public-private partnerships is a profession by itself. TI Pharma is an excellent example of how you can do this in an effective way.”
Director/Secretary of the Medicines Evaluation Board